The Blessing of a Progressive, Incurable, Terminal Disease, Part 1

This could be a description of growing old! We are all dying of a progressive, incurable, terminal disease which is the curse of sin upon creation and human lifespan. Sandie was 66 years old when she died. The peak of life is 33 years old. It’s a fast climb to 33 and then a slow descent to 66. (It’s a slow descent to however long you live after 33.) The last 3 years of her life were a rapid descent, but we experienced the blessing of a progressive, incurable, terminal disease. Good news! Sandie will be the equivalent of 33 years when I see her again in heaven and so will I. We will enjoy eternity in 33-year-old resurrection bodies!

How can a progressive, incurable, terminal disease be a blessing?

First blessing was learning how to pray for healing. How did I pray for Sandie during her 3-year struggle with her disease? I took her to a healing evangelist from India who travels around the USA and nothing happened. (I’ll name him: Ankit Rambabu. I’m not judging the validity of his ministry. Jesus is the judge.) She stood in the “healing line” and was touched by the evangelist; nothing happened. I didn’t see anyone get healed that night. At least one third of the meeting was about money. I gave all the cash in my wallet after the evangelist made his long appeal for money. I later realized I was trying to buy Sandie’s healing.

Later, I met a sincere person who told me to call a man with a “gift of healing”. I called and he commanded healing. He commanded and then asked if there was any movement in Sandie’s stiff legs and arms. Nothing. He hung up.   

We watched 700 Club many nights. There would be a time of healing prayer with “words of knowledge” spoken by Robertson and others. I noticed that all the “words of knowledge” for healing were about minor problems, something a person could go to a doctor for or get a prescription. (Of course, minor health problems can become big annoying problems for those who are suffering from them.) I waited for a “word of knowledge” about an incurable, terminal illness, like cancer, or a degenerative neurological movement disorder. Nothing. Only minor problems that were not life-threatening. (OK, there were a few who had life-threatening health problems like a guy who had cancerous tumors growing all over his body and he was healed, but 95% were minor problems.)

I prayed Psalm 103:1-5 over Sandie many times. I claimed the benefits Jesus paid for: “Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit (of death).” We know the Lord forgives all our sins; therefore, He must also heal all our diseases. Her disease wasn’t healed. She’s in heaven now and received the healing Jesus paid for.

I’m growing weary of fake Christian triumphalism. I despise “name it and claim it” or “declare it” Christianity.

I gave up praying Psalm 103 toward the end and began praying for mercy. I didn’t have the faith to believe a miracle. I rolled her emaciated body every day. I changed her diapers. I pulled out her poop. I bandaged her smelly bed sores that went to the bone. When she died (not “passed away”) she was less than 100 pounds. I prayed for mercy. The Lord may deny healing while we live in this world under the curse of sin, but not mercy. You may not receive the healing you ask for, but you will receive mercy. Hebrews 4:14-16 is now my primary scripture when praying for healing of body and soul.

I gradually moved from “name it and claim it” abuse of promises to disillusionment and disbelief and then to surrender and trust in the Lord and His good purpose and plans. I appeal for mercy to the throne of grace of the Lord Jesus who has felt pain and suffering.

I prayed Job a lot. After Satan’s first attack, Job had a right attitude: “The Lord gave and the Lord has taken away. Blessed be the name of the Lord.” After Satan’s second attack on Job’s health, he started to complain. (There were times I complained during Sandie’s disease. Caregiving is stressful even if you are healthy.) But the Lord also restored all Satan stole and more when Job realized his own self-righteousness and forgive his accusers. (I always confessed my sins of impatience and anger. Now I am waiting for restoration.)

I am re-reading Adventures In Adversity (Paul E. Billheimer) about the sanctification of Job. If you are in adversity or affliction, then read it.

I’m working on Part 2.

Missing Sandie: Weeping

Grief is like a rollercoaster. I am crying and laughing at the same time. One minute I’m weeping and the next I’m rejoicing. The rejoicing comes from a secure HOPE. 1 Thessalonians 4:13: But we do not want you to be uninformed, brothers, about those who are asleep, that you may not grieve as others do who have no hope.

Grief needs weeping. Weeping is necessary. Jesus wept with weeping friends (John 11). Weeping is to grief as a vent is to a pressure cooker. Weeping releases the loss and pain of grief. It is healing for the soul and even the body.

Weeping is unpredictable. I am an “on call” night chaplain. When someone dies between 5pm-8am I am “called back” to the hospital. Five days after Sandie went to heaven I was called to the hospital (8/10). I met with the family of the deceased patient and talked with the NOK. I asked if she was present when her mother died, the moment her mother’s spirit left her body. She was. I shared my experience of being with my wife when she died five days ago and how I saw her spirit leave her body. I started weeping! Then all the family members in the room were weeping.

We all wept together. Romans 12:15: Rejoice with those who rejoice, and weep with those who weep.

I don’t know when I will weep. Something will trigger the tears; a picture, a memory, a song, another person’s grief at his/her loss. I wept 3 months before Sandie died. I was driving around Big Bend NP while taking a respite from caregiving listening to satellite radio and John Denver’s Annie’s Song came on. I sang it and wept; it was “Sandie’s Song” for me. When the weeping is triggered, just let the tears flow. Don’t be embarrassed or try to “be strong”. Open the vent and let the pressure be released in tears.

Weeping is an expression of love. John 11:35-36: Jesus wept. So the Jews were saying, “See how He loved him!”  Love weeps.

Journey of Grief

Missing Sandie, Day 1: The value of a person’s life is not found in material things, houses, cars, bank accounts, or net worth; the value of a person’s life is found in who he or she believes in (i.e., Jesus Christ) and how he or she loves like Him. Jesus Christ owned nothing during His 33-year incarnation and demonstrated the greatest love. Jesus said to his disciples: John 15: 12 “This is my commandment, that you love one another as I have loved you. 13 Greater love has no one than this, that someone lay down his life for his friends. 14 You are my friends if you do what I command you.”

Sandie loved like Jesus Christ with the “greater love”. She was His friend and did what He commanded. I kept my marriage vow. I kept my promise to Sandie: “for better for worse, for richer for poorer, in sickness and in health, to love and to cherish, till death do us part.” The only regret I have is that I didn’t say “I love you” more often. There were times during her long disease and the stress of caretaking that I was tempted to quit my vow, but the temptation was easy to resist. I knew if I broke my promise to her then I would live in regret, selfishness, and anger the rest of my life in this world. I would never be able to love like Jesus Christ. I loved her for 38 years and love doesn’t break a promise. God is the prime example of promise keeping and the Bible records it.     

The Lord’s Mercy at Death: August 5, 2025

I have been praying for several weeks for God to be merciful and take Sandie to heaven: “If it isn’t Your will to heal her, then have mercy and take her to be with You.” The Lord answered my prayer. The Lord has been merciful. She was never in pain throughout the three-year course of this disease, the gradual loss of movement, and then 24/7 confinement to a hospital bed at home. I had hoped she would make it to our 38th wedding anniversary 8/15 (8/15/1987) and then go to heaven. The Lord had other plans.  

I see Jesus’ mercy in her last days and moments in this world. The past couple nights we have watched several videos from Imagine Heaven Podcast with John Burke and some videos from AI Bible “Biblically Accurate Heaven” to prepare her for heaven. I even told her “You’ll be going there soon.”

I came awake around 5am and was conscious of a sound. I remember thinking, “What’s that sound?” It was different from the low humming of the pressure mattress of the hospital bed. I went back to sleep. I woke up at 7am and realized Sandie was making the sound. Her breathing was shallow, and her eyes were open. I looked into her eyes and for a moment she looked into my eyes. I think the Spirit of God put in my mind, “It’s the death rattle.” I called hospice care. She had a blank stare but was looking at something. I think she was getting a glimpse of eternity. I notified our children, and they joined a WhatsApp video call. They told their mom they loved her. She heard them. A few minutes later her spirit left her body. There was no breath, no pulse, dilated pupils without flinching, and her lips and arms were cold. I put my ear to her chest and heard no beat. Her spirit left her body while we all watched.

About 20 minutes later the hospice nurse arrived and pronounced her dead. (She helped with contacting All Texas Cremation and American Forensics. A sample of Sandie’s brain tissue will be sent to Mayo Clinic studying her specific neurological disorder – CBD & PSP).

Here’s how I see Jesus’ mercy. She could’ve passed away during the night and I would never have known. We would never have had a last moment with her. But the Lord waited until I woke up (a second time) and contacted our children so they could be with her at the last moment.

I can only imagine what she’s experiencing now!     

Scars of God

I am tempted to deny my faith because of my wife’s suffering. I struggle with her suffering, her emaciated body, and her slow death of an incurable disease. I struggle with bitterness and anger toward God. “Why is my wife suffering? Why are You allowing this to happen to her?”

What keeps me clinging to my faith by my fingernails is the God who has suffered and has the scars to prove it. No other gods of other religions have suffered in flesh and have scars to prove it, motivated by love.

I worship the God who has suffered.

I worship the God who has scars.

Jesus has scars on his hands, feet, and his side from crucifixion.

Messianic Psalm 22 foretold the scars. Psalm 22:16: For dogs have surrounded me; a band of evildoers has encompassed me; they pierced my hands and my feet.

The scars were not removed from Jesus’ resurrection body. Why was it important to retain the scars? (I hope my scars are removed from my resurrection body.) The scars are proof of Christ’s suffering. The scars were also proof Christ was not a ghost or spirit. The same body that was crucified was the same body resurrected.

Read JOHN 20: 19 On the evening of that day, the first day of the week, the doors being locked where the disciples were for fear of the Jews, Jesus came and stood among them and said to them, “Peace be with you.” 20 When he had said this, he showed them his hands and his side. Thomas didn’t believe his fellow disciples when they told him they saw Jesus alive and he said, “Unless I see in his hands the mark of the nails, and place my finger into the mark of the nails, and place my hand into his side, I will never believe.”

Then: 26 Eight days later, his disciples were inside again, and Thomas was with them. Although the doors were locked, Jesus came and stood among them and said, “Peace be with you.” 27 Then he said to Thomas, “Put your finger here, and see my hands; and put out your hand, and place it in my side. Do not disbelieve but believe.” 

Jesus’ hands, feet, and heart were pierced. His largest scar is the side scar. A Roman soldier thrust his spear under Jesus ribs and into his heart, blood and water poured out. JOHN 19: 33 But when they came to Jesus and saw that he was already dead, they did not break his legs. 34 But one of the soldiers pierced his side with a spear, and at once there flowed out blood and water.

Jesus also showed the scars on his feet where nails were driven through his heel or ankle bone.

Luke 24: 38 And he said to them, “Why are you troubled, and why do doubts arise in your hearts? 39 See my hands and my feet, that it is I myself. Touch me and see. For a spirit does not have flesh and bones as you see that I have.” 40 And when he had said this, he showed them his hands and his feet. 41 And while they still disbelieved for joy and were marveling, he said to them, “Have you anything here to eat?” 42 They gave him a piece of broiled fish, 43 and he took it and ate before them.

They are scars of love. If I risked my life to save you from an accident and got a scar while doing it, then it would be a scar from a sacrifice, a scar of love. If I were a fireman and rescued you from a burning building and got burned doing it, then it would be a burn scar from a sacrifice, a scar of love. Jesus’ scars are scars of sacrificial love.

Revelation proclaims “the Lamb who was slain” indicating Jesus retains the scars of His love in heaven. (See Revelation 5.)

Whenever I am tempted to disbelieve and shake my puny fist at God, I sing this song and the Spirit in my spirit overcomes my anger and makes me cry:

He who is to come
Christ the Son of man
Riding on the cloud with a crown upon His head
Every eye will see Him
With the nail scars in His hands
Hallelujah, Hallelujah!

I worship the God who has scars.

Suffering God

I’m tempted to quit my faith in God. Why does God allow my wife to die a slow death by an incurable disease? Why did God allow a river in the hill country of Texas to flood and drown 27 girls in a Christian camp? As the flood waters raged and swept away the terrified girls and many others, did Jesus command the angels not to interfere and save anyone and let them die horrible deaths by drowning? What about all the broken-hearted parents? What’s the difference between God doing something or allowing it to happen? Aren’t the results the same? There’s still suffering and death. Well, of course, our theology says God cannot do evil because that would make God evil. If God permits evil to happen, then we can say God isn’t evil. It’s convenient theology that allows us to believe God may achieve some greater good.

Yes, I’m tempted to quit my faith in God. I’m hanging on by a thread. That thread is NOT that faith is tested by trials and grows stronger, although I believe this to be true. That faith is NOT that God works all things together for the good of those who love him and are called according to His purpose, although I believe this to be true. That thread is that God has suffered. God allowed Himself to feel physical and emotional pain. God allowed Himself to suffer loss and death. Jesus suffered an excruciatingly painful death at the hands of evil people. (Read Isaiah 53.) Jesus’ suffering actually began when he became incarnate and entered this world under the curse of sin. (Read Philippians 2:3-9) My faith is in a God who has suffered. So, I’m not really hanging on to my faith by a thread. I’m hanging on hooked to a steel cable. Jesus Christ has felt suffering and pain and because He has suffered, He is able to intercede for us in our suffering. (Read Hebrews 4:14-16.) I worship the God who has suffered.

Will of God??

My wife of 37 years is dying of an incurable disease. I watch her die every day. She looks like a skeleton with skin. I am powerless to do anything. I’m praying for God to be merciful and let her die. “Jesus, you are merciful. Show your mercy and take her to heaven, to be with you. End her suffering. That’s mercy.” It’s also mercy on me because I hurt every time I look at her emaciated body and treat her sores that don’t heal and get infected.

Is it appropriate to ask the God who gave her life 66 years ago to take her life now? What is the will of God? Should I pray, “Jesus, if it’s your will, take her to heaven to be with you.”

My hope is she will live until our 38th anniversary 8/15/2025, but I don’t want her to suffer anymore. I want her to go to heaven and see Jesus, her father, my parents, and other friends who are already there, and wait for me to come.

The Switchbacks of Life: Part 1

I like hiking Big Bend National Park. Trails start at Chisos Basin and ascend to the highest point, Emory Peak, 7832. It’s 2400 ft elevation gain from Chisos Basin over 4.8 miles.

While hiking at Big Bend NP, ascending and descending mountains, I saw a sign. The sign says, “Help Us Prevent Trail Erosion. Please Do Not Cut Switchbacks.”

First, hiking a trail from trail head to mountain top represents a spiritual journey. Hiking is my analogy of a believer’s spiritual journey. It’s the spiritual journey of a Christian from “new birth” to eternal life in heaven.

Second, the switchbacks represent tests or trials on our spiritual journey. It is one word in GR (peirazw). Tests and trials become temptations when Satan comes to take advantage of the situation. The trial situation gives God the opportunity to see what you are made of, and it reveals attitudes and character. Jesus was tempted by the devil, but it was a test of Jesus’ obedience to the Father’s plan. God tested the faith and obedience of Abraham to sacrifice his son.

Third, the first part of the trail is a gradual ascent with some flat parts. As the trail gets steeper and closer to the mountain top there are switchbacks.

Life has many switchbacks. God gives us switchbacks in life. God will not allow us to cut the switchbacks. God does not want “trial erosion”. (trail erosion, trial erosion – get it?) God has a purpose for the trial and cutting the switchbacks would cause trial erosion. The only way to finish a trial is to go through it and understand God’s purpose in the trial.

God may be merciful and shorten the trial: 1 Corinthians 10:13. No temptation/test has overtaken you that is not common to man. God is faithful, and he will not let you be tempted/tested beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to patiently endure it. This does not mean God will remove the test or trial, no trial erosion. It means He will provide “respite” and supply the strength to endure it, get through it, bear the pressure of it. (Just like hospice offers a 5-day respite for stressed caretakers.)

The greatest test in life, the steepest switchback, is when life doesn’t happen the way you want it to. It’s when life doesn’t happen according to your plan. Life takes a sudden left turn when you plan to take a right turn. What is God doing? Is God really in control. Is this Father God’s perfect plan for my life and my wife’s life? It can be something minor or something major. That steep switchback can be a disease or some other major loss. It’s a test of faith in the goodness and love of God.

If life doesn’t work out the way I want, then I must believe it is working out the way God wants. I must trust God. If life doesn’t happen according to my plans, then I must believe it is happening according to God’s “perfect” plan. This is not easy, but if you want to have peace then you must believe it.

I had a plan to retire and grow old with my wife. A plan for us to be as healthy as we could be in our late 60s. A plan for us to work part-time to supplement social security. But then in late 2021 Sandie began to feel shaking symptoms. It was diagnosed as ET (Essential Tremor) and then Parkinson’s. When we came to Dallas in late 2022 it was diagnosed as CBD (Corticobasal Disease) or PSP (Progressive Supranuclear Palsy). Life didn’t happen according to our plans, and I am now a full-time caretaker.

What do you do when you come to the steepest switchback, the hardest trial? – Part 2 coming soon.

2 are better than 1

I got married because 2 are better than 1.

The Bible affirms this: Ecclesiastes 4:9-12: “Two are better than one, because they have a good return for their labor: If either of them falls down, one can help the other up. But pity anyone who falls and has no one to help them up. Also, if two lie down together, they will keep warm. But how can one keep warm alone? Though one may be overpowered, two can defend themselves.
A cord of three strands is not quickly broken.”

What do you do when your spouse cannot do anything due to a degenerative movement disorder? We needed her labor to supplement retirement income. She cannot work. She falls and I struggle to pick her up. She cannot keep me warm at night. She sleeps in a hospital bed because she urinates a lot at night. I sleep beside her in another bed. She cannot defend me physically or verbally in an argument.

But God has not left us alone. The chord of three strands are our three children. They do what they are able to help.

Anger at God

I’m angry. I’m angry with God. I’m angry with God and it comes from emotional pain. It’s the pain I feel when I see what a degenerative brain disease has done to my beautiful wife. We’ve been married 36 years. I wanted us to grow old together and be as healthy as people in their 60s can expect to be. I want my wife back with all her energy, charms, and beauty. God is taking her away and I’m angry.

I’ve been impatient and angry at my wife for the loss of her abilities. I’ve used some demeaning terms when I’m impatient and angry. I know my wife doesn’t want the disease she has. She doesn’t do things to make me angry. She has lost her fine-motor skills and needs help with almost everything, eating, brushing teeth, sitting down, sitting on the toilet, cleaning herself, putting on clothes, even speaking and being understood. I said to myself, “Why am I angry with her. It’s a brain disease. She can’t help it. She doesn’t want it. She cries when praying to God.” Then I realized I was really angry at God. We’ve prayed for healing. We’ve been to healing services. We’ve believed the promises with faith. No answer. At least no visible healing. Why is God doing this to her? Or why is God allowing it. The seeds of this brain disease must have been in her DNA when she was conceived, and God is allowing it to do what it’s doing. He hasn’t done anything to heal it. It really doesn’t make a difference if God does it or allows it. It’s the same result. There may be a difference in motive. If God does it, then He’s cruel. If God allows it, then He appears to be cruel but may have a good purpose. God may have a redemptive purpose for allowing it, but I cannot see it now.

I continue to ask “Why?” waiting for an answer.